Our research results are listed below in chronological order by date. You can also search by topic or browse the archives on the right.
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ANSWER: 76% focus on a regular bedtime 65% use melatonin or other non-Rx supplement for sleep 39% give our kiddos a bath, warm milk, a weighted blanket or other non-medication tactic to help them sleep 26% have an Rx specifically to improve sleep 24% take an Rx that isn’t prescribed
ANSWER: 1. The Explosive Child, by Dr. Ross Greene (book) 2. Dr. Fisher videos (click here for the link: https://www.youtube.com/playlist…) 3. Facebook support groups [Note: These groups are a great source of emotional support for our families. There are many to choose from, but we recommend you also join the
ANSWER: 22% of DMDDers with sleep issues have had a tonsillectomy and/or adenoidectomy. Of those 15 who had the procedure, only 1 said it improved sleep issues completely; 7 said it improved sleep somewhat; and 7 said it didn’t improve sleep at all. (Source: Facebook Survey to DMDD-related groups, July
ANSWER: 19% of our kiddos with sleep issues have had a sleep study done. Another 11% are planning to do one. Of those that had the sleep study done: 57% found our kiddos has sleep apnea 36% found our kiddos had sleep hypopnea (Source: Facebook Survey to DMDD-related groups, July
ANSWER: 96% of our DMDD kiddos have trouble sleeping. 😥 85% have trouble falling asleep 69% have trouble staying asleep 43% have night terrors/nightmares or other disruptions 22% have additional issues like bed wetting, waking up early, teeth grinding or restlessness/kicking. (Source: Facebook Survey to DMDD-related groups, July 2019. n=72.)
ANSWER: Sadly, 87% of us received NO educational or support group recommendations at diagnosis (e.g. books, videos, websites, support groups). (Source: Facebook Survey to DMDD-related groups, July 2019. n=32)
ANSWER: Most of us have heard something about it (66%), but many (34%) have not. (Source: Facebook Survey to DMDD-related groups, June 2019. n=100)
ANSWER: Almost a third of us have tried it, but many are still too early in the process to say whether it’s been successful. 9% Have tried it, and are happy with the results 7% Have tried it, but are having some issues 16% Have just started, so aren’t sure
ANSWER: Not surprising, most of us are biological moms (73%). What was surprising, is that 16% of us are adoptive parents. This is interesting, given that only 1% of kids in the U.S. are adopted. And a shout out to the dads, grandmas and step-moms – it takes a village!
ANSWER: We are everywhere! Of the 95 responses, we represented 35 states and Canada! (Source: Facebook Survey, June 2019. n=95)
ANSWER: 67% said yes. Of those with additional diagnoses, the most common were ADHD/ADD (70%), Anxiety (61%), and Depression (31%). (Source: Facebook Survey to DMDD-related groups, June 2019. n=95
ANSWER: 82% of our kids are under 14 years old. The average age is 11. (Source: Facebook Survey, June 2019. n=95)
Answer: 68% were diagnosed in the past two years. 25% were diagnosed in the last six months. (Source: Facebook Survey, June 2019. n=95)
Answer: 86% of our kiddos were diagnosed before age 12. The average age at diagnosis was 9.